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Down Syndrome
The CDC's information about Down Syndrome including helpful resources for families.
Down Syndrome Parent Information: English Spanish
This parent guide to Down Syndrome from the NICHY provides information on the disorder, parenting tips and resources for families.
Health Care Guidelines for Individuals with Down Syndrome
These recommendations are a thoughtful composite of the input of many clinicians involved in the care of people with DS. They reflect current standards and practices of health care in the United States of America.
Health Supervision for Children With Down Syndrome
These guidelines are designed to assist the pediatrician in caring for the child in whom the diagnosis of Down syndrome has been confirmed by karyotype. Although the pediatrician's initial contact with the child is usually during infancy, occasionally the pregnant woman who has been given the prenatal diagnosis of Down syndrome will be referred for counseling. Therefore, these guidelines offer advice for this situation as well.
Physician's Guide to Delivering a Diagnosis
This guide has been prepared to assist physicians facing the challenge of informing parents that a child has or may have Down syndrome.
This PowerPoint presentation addresses the role that developmental pediatrics can plan in children with Down Syndrome and the Co-morbid diagnoses that can occur.
Internet Resources and Websites
National Association for Down Syndrome: www.nads.org
National Down Syndrome Congress: www.ndscenter.org
National Down Syndrome Society: www.ndss.org
Best Buddies: www.bestbuddiesarizona.org
Down Syndrome Network AZ: www.dsnetworkaz.org
Down Syndrome Health Issues: www.ds-health.com
Sharing Down Syndrome: www.sharingds.org
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Related links
Arizona Early Intervention Program
Copyright 2012 Phoenix Children's Hospital
1919 East Thomas Road, Phoenix, AZ 85016
Phone: (602) 933-1000
