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Fragile X Syndrome
Advances in the treatment of Fragile X Syndrome
This article from Pediatrics reviews information from current studies on FMR1, its behavioral and neurobiological features as well as targeted treatments, medical and behavioral interventions, genetic counseling and family support resources.
Fragile X Syndrome: An Update and Review for the Primary Pediatrician
The current state of knowledge is reviewed and a framework for early recognition and diagnosis is provided in this article.
Consensus of the Fragile X Clinical & Research Consortium on Clinical Practices
Assessment in Fragile X Syndrome
Behavioral Problems in Fragile X Syndrome
Educational Guidelines for Fragile X Syndrome: General
Educational Guidelines for Fragile X Syndrome: Preschool through Elementary Students
Educational Guidelines for Fragile X Syndrome: Middle and High School Students
Financial Resources for Individuals with Fragile X Syndrome
Fragile X-associated Primary Ovarian Insufficiency
Fragile X-associated Tremor-Ataxia Syndrome
Genetic Counseling and Family Support
Genetic Counseling and Family Support Complimentary Material - FMR1.pdf
Hyperarousal in Fragile X Syndrome
Medications for Individuals with Fragile X Syndrome
Physical Problems in Fragile X Syndrome
Seizures in Fragile X Syndrome
Sleep in Children with Fragile X Syndrome
Toileting Issues in Fragile X Syndrome
Use of Complementary and Alternative Therapies in the Treatment of Fragile X Syndrome
Internet Resources and Websites
Fragile X Information: www.nlm.nih.gov/medlineplus/
MedlinePlus is an information service provided by the U.S. National Library of Medicine and National Institute of Health.
Fraxa Reseach Foundation: www.fraxa.org
Fraxa is a nonprofit, parent run organization whose mission is to find treatments and a cure for Fragile X. Their website provides information about their organization, Fragile X, current research and support information.
Fraxa A to Z Guide for Families: English
The National Fragile X Foundation: www.fragilex.org
The National Fragile X Foundation works to unite the Fragile X community to enrich lives through education and emotional support, promote public and professional awareness, and advance research.
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Related links
Arizona Early Intervention Program
Copyright 2012 Phoenix Children's Hospital
1919 East Thomas Road, Phoenix, AZ 85016
Phone: (602) 933-1000
